■ Welcome and Overview
Roy B. Jones, MD, PhD, M.D. Anderson Cancer Center, Houston, Texas
■ Pre-2005 HCT Data in the United States: Evolution and Terminology
J. Douglas Rizzo, MD, MS, Center for International Blood and Marrow Transplant
Research, Milwaukee, Wisconsin
■ 2005-Present: Requirements and Uses of HCT Databases
(PowerPoint slides are combined with the "Pre-2005" sides above.)
Dr. Rizzo
■ ASBMT IT Survey: Current Data Storage, Retrieval and Transmission Resources
Dr. Jones
■ Data Standards and Transmission of Standardized Data
Ken Bengtsson, National Marrow Donor Program, Minneapolis, Minnesota
John Speakman, National Cancer Institute, Bethesda, Maryland
Jacki M. Hatfield, StemSoft Inc., Vancouver, British Columbia
FormsNet™ 2.0
AGNIS (PowerPoint slides are combined with the FormsNet™ 2.0 presentation above.)
caBIG
StemSoft
■ Storage of Standardized Data
Charles Martinez, BS, M.D. Anderson Cancer Center, Houston, Texas
■ Imperatives for Change
Dennis L. Confer, MD, National Marrow Donor Program, Minneapolis, Minnesota
Breakout Sessions
A. Data Standards: Storage and Transmission
B. Data Collection and Generation
C. Data Sharing
D. Security and Confidentiality
Demonstration Workshops
■ FormsNet™ 2.0
Mr. Bengtsson
■ MD Anderson BMTWeb
Dr. Jones and Mr. Martinez
■ NCI apps
Mr. Speakman
■ Stemsoft
Ms. Hatfield
Saturday January 19
Case Samples
■ Center Collecting and Providing HCT Data Using Manually Entered FormsNet™ 2.0
Data Transmission
Mr. Hurmiz
■ Center Collecting and Providing HCT Data Using a Stemsoft Core
Keith Anderson and Connie Marshall, Children's Memorial Hospital, Chicago
■ Center Collecting and Providing HCT Data as an “Institutional CDE Island”
– Proprietary Solutions
DeFor
■ Cancer Center with CDEs fully implemented – proprietary solutions
Dr. Jones
Breakout Session Reports
A. Data Standards: Storage and Transmission
B. Data Collection and Generation
C. Data Sharing
D. Security and Confidentiality
■ Summary and Concluding Remarks
Roy Jones and Charles Martinez